Wednesday, December 19, 2007

High rises, Slums, and Statistics

OR: What to do when every day is World AIDS Day?
December 1, 2007

I woke up in an identity crisis. The Discovery Channel show on how animals express emotion playing on our friend’s TV that morning may have crept into my unconscious and put me in a particularly vulnerable state, but there was no way to avoid the fundamental issue: I was on the verge of tears because it was World AIDS Day and I had no particular plans.

My NGO focuses on technical assistance. We have some direct implementation programs, like a support center for ‘sexual minorities’ that runs out of our Kolkata office, but mostly we help smaller NGOs to help themselves to help the people. So our partners had programs, but we didn’t. And I, with my distinctly lacking Telugu skills, would not be much use to a busy event without a co-worker to translate for me. My co-workers were all out in the field evaluating the partners, because it’s the season for evaluation and next-year planning. And so there I was, sitting in a Westernized flat in a wealthy neighborhood where people know about condoms, but probably don’t worry so much about AIDS. Not educating, not advocating. Just lounging in bed on a lazy Saturday morning.

Last year on December 1, I was sitting behind a police line on the sidewalk in front of the white house dressed as a bottle of anti-retroviral pills. Soon afterwards, I was sitting in a locked van, wrists tied behind my back in plastic cuffs, watching the sun set over the traffic jams of Washington, DC as we drove towards the city park jailhouse. And eventually, I sat free on the front wall of the police compound, greeting each activist as they were released, and enjoying the glitter of the stars reflecting on the Potomac courtesy of bail provided by DC Fights Back! and the Student Global AIDS Campaign.

The year before that, I was madly selling home-made t-shirts in the campus center to raise money for an amazing NGO I was lucky enough to spend a day visiting in Kibera, one of the densest slums in the world, where nearly a million people live in one square mile of land on the edge of Nairobi, Kenya. Lauren was running AIDS-related documentaries one floor above me, and we were both deliriously under-slept. That night, with a slew of helpers, we plastered the walls of a dance hall with condoms, set up a six-foot-tall red plywood AIDS ribbon in the hallway, and put on an amazing party.

So what was I doing sitting so still, feeling so well rested, watching the red ribbon pinned on the anchorwoman’s shirt with feelings of vague approval and intense guilt? An ad came on for a movie premier that night; four famous Indian directors and a broad spectrum of Indian stars and starlets in a beautifully produced set of stories about living with HIV. I felt torn between wanting to see it because the thing looked well done, and not wanting to watch because that activity felt so distinctively insufficient. At this point I realized that I was acting like a petulant child.

So we went to the lake. I was sitting with my head against the window of our friend’s car, staring out at the gargantuan office buildings of Hi-Tech city (where all those calls to 1-800 customer support lines are directed) when Myla handed me her cell and said ‘Leah needs information on AIDS in India – they have to give a talk for World AIDS Day in an hour.’ My brain, or at least the part that stores all the numbers, looked up, stopped slouching and dusted its jacket.

“In 2007, the estimated number of people living with HIV in India was cut in half, to 2.5 million, revealing an adult prevalence rate of just above 0.3%. But even with this drastic downward revision in the estimation of the Indian epidemic, India is home to the world’s third-largest population of people living with HIV, following South Africa and Nigeria. India faces unique challenges, with a relatively low adult prevalence rate, but an astronomical number of people who will need care, support and treatment services in the coming decade and beyond. Based on antenatal data, six states have been defined as ‘high prevalence,’ with a HIV prevalence rate above 1%: Tamilnadu, Andhra Pradesh, Karnataka, Maharashtra, Manipur, and Nagaland. The six high prevalence states together contribute 70-80% of total positive cases in the country, and as of the latest numbers, Andhra officially has the highest infection rate, at 1.2%.”

[maybe I just copied that from the Annual Report, but since I wrote it in the first place, I’m pretty sure its not plagiarism]

She asked me if I knew how many Indians had died. I had no idea – we focus on living positively, finding out who’s affected, and trying to figure out how best to support them, I answered. In any case, AIDS is not even in the top ten killers in India – so why is there a National AIDS Control Office, but nothing like the same level of funding for Malaria, TB, or everyone’s favorite, water-borne diarrheal diseases? One of my co-workers explained that the health budget is significantly determined by international funding, and thus… NACO! It sounded like a plausible explanation to me. Or at least the beginning of one.

While I was chattering away, we passed the lake. The lake, however, was looking a bit ill (since the monsoons stopped a few months ago), and not up for visitors. So we kept driving. We passed slums, and a few herds of buffalo doing a half-hearted job of blocking the roads. I wished Leah good luck, and passed the phone back to Myla. ‘Well, that was my contribution,’ I thought, and ordered a lemon tea and walnut date bread at the pseudo-Starbucks Coffee Day cafĂ© chain.

‘If every day is AIDS day in my world, doesn’t that count? Do I need a World AIDS Day?’ I asked the tea. ‘How much more can my awareness be raised?’ The tea didn’t respond. The steam rising off the cup, however, muttered subversively, ‘there’s always something to learn, always something to celebrate, always something to shout in the streets about.’ But steam dissipates quickly, so I held the warm cup against my cheek and replied. ‘I’ll work hard on Monday, on helping some sliver of people with some sliver of the hardships they’re facing. And the day after, I’ll do a little more.’

And so once I gave up my illusions of grandeur, of tying specific implications to a specific day, the rest of it went simply, and pleasantly, by. I went to dance class, and stood in the back behind the rows of giggling girls, and gestured and smiled and sweat. I met Myla in the congested market that surrounds Secunderabad Railway station, and she recognized me in a crowd of hundreds from blocks away by the glint of my hair in the neon lights. We called our friend Blanca and cooked for her and sipped fresh coconut juice straight from the nut and watched Pirates of the Caribbean in a pile of mango candy wrappers. There was no planning, no protesting (at least not outside my head) – just a quiet day of rest to prepare for the next week of work out in the world.

2 comments:

ZR Gore said...

You're such a great writer!

By the way, I got your letter and I'm in the process of replying!

Love,
Zach!

Gluten Free Sourdough Baker said...

Dear Lily,
Your passion for your work is inspirational! Thank you for what you are doing to shape the world

sincerely,
myla's mom